Patients Participate!

The blog for the JISC-funded Patients Participate! project. Community Content for Participative Medicine: A Feasibility Study.

Category: Patients Participate! project

Citizen Science briefing paper available in print.

Last week I received my supply of printed copies of the Digital Curation Centre (DCC) Briefing Paper on Citizen Science, produced by the Patients Participate! project. Order your copies through the DCC by emailing or print off your own using the downloadable pdf from the website. We will be really pleased to receive any [...]

Citizen Science briefing paper published.

The briefing paper from the Patients Participate! project has now been published on the Digital Curation Centre website as part of their briefing paper series. The Citizen Science briefing paper provides an introduction to citizen science, presents benefits, and lists issues to be considered when planning citizen science activities. It is available both as a [...]

Introducing the partners: AMRC

The Association of Medical Research Charities (AMRC) and our 127 member charities provide a direct link to the broader citizen-patient community. AMRC member charities funded over £1 billion for research in 2009/10 – carried out mostly in the university sector. Our involvement in Patients Participate! builds on a project called ‘Natural Ground’, which we carried [...]

Invitation to comment

The Patients Participate! project has released two deliverables for open community review. The first is a guide to writing Lay Summaries, and forms part of the DCC series of How To guides, pitched at an intermediate level, offering practical advice. We’re currently seeking comments on the draft of the ‘How To write a Lay Summary’. [...]

Scenarios for writing lay summaries

In preparation for the workshop, the project constructed a number of scenarios to help think through examples of how web-based, biomedical information resources, technologies and communities could support translation of emerging research findings into plain English. These scenarios were not intended as suggested services, but rather the aim was to stimulate group discussion and invite [...]

Presentations from the workshop.

The presentations from the workshop are now available from slideshare. These are in addition to the recording of Liz Lyon opening the event. Crowdsourcing Lay Summaries: Bridging the Gap in Health Research by Liz Lyon Accessing Biomedical and Health Information by Lee-Ann Coleman .prezi-player { width: 550px; } .prezi-player-links { text-align: center; } JISCPP on [...]

Workshop Speakers

At the workshop I managed to record the welcome and introduction to the project by Liz Lyon using a Flip camera, and this is now available from vimeo. Warning: there is flash photography which can be seen in the recording. Liz Lyon opening the Patients Participate! Workshop, Jun 2011 from UKOLN on Vimeo. The Biographies for [...]

After the workshop: a thank you.

The project team would like to thank all those who came to the Patients Participate! workshop on Friday 17th June 2011.  We are very encouraged by the level of attendance and engagement during the event.  We are very appreciative of the information and views we have gathered through your input, and we will be producing [...]

The Patients Participate! Workshop

Bridging the Gap between Information Access and Understanding in Health Research 17 June 2011 The British Library Conference Centre We now have more access than ever to scientific papers and summaries of biomedical and health research. Anyone with a computer and an internet connection can read the latest research results due to initiatives like UK [...]

Introducing the Project Partners: UKOLN

The Open Science at Web Scale report published by UKOLN in 2009, discussed the possibility of engaging the public in science, by extending the science team to include interested volunteers or amateur scientists or citizens. Citizen Science is a term used for projects in which volunteers, including the general public and enthusiasts, engage in research-related [...]