Patients Participate!

The blog for the JISC-funded Patients Participate! project. Community Content for Participative Medicine: A Feasibility Study.

Category: deliverable

Citizen Science briefing paper available in print.

Last week I received my supply of printed copies of the Digital Curation Centre (DCC) Briefing Paper on Citizen Science, produced by the Patients Participate! project. Order your copies through the DCC by emailing or print off your own using the downloadable pdf from the website. We will be really pleased to receive any [...]

Citizen Science briefing paper published.

The briefing paper from the Patients Participate! project has now been published on the Digital Curation Centre website as part of their briefing paper series. The Citizen Science briefing paper provides an introduction to citizen science, presents benefits, and lists issues to be considered when planning citizen science activities. It is available both as a [...]

Invitation to comment

The Patients Participate! project has released two deliverables for open community review. The first is a guide to writing Lay Summaries, and forms part of the DCC series of How To guides, pitched at an intermediate level, offering practical advice. We’re currently seeking comments on the draft of the ‘How To write a Lay Summary’. [...]

Scenarios for writing lay summaries

In preparation for the workshop, the project constructed a number of scenarios to help think through examples of how web-based, biomedical information resources, technologies and communities could support translation of emerging research findings into plain English. These scenarios were not intended as suggested services, but rather the aim was to stimulate group discussion and invite [...]

Presentations from the workshop.

The presentations from the workshop are now available from slideshare. These are in addition to the recording of Liz Lyon opening the event. Crowdsourcing Lay Summaries: Bridging the Gap in Health Research by Liz Lyon Accessing Biomedical and Health Information by Lee-Ann Coleman .prezi-player { width: 550px; } .prezi-player-links { text-align: center; } JISCPP on [...]

After the workshop: a thank you.

The project team would like to thank all those who came to the Patients Participate! workshop on Friday 17th June 2011.  We are very encouraged by the level of attendance and engagement during the event.  We are very appreciative of the information and views we have gathered through your input, and we will be producing [...]

The Patients Participate! Workshop

Bridging the Gap between Information Access and Understanding in Health Research 17 June 2011 The British Library Conference Centre We now have more access than ever to scientific papers and summaries of biomedical and health research. Anyone with a computer and an internet connection can read the latest research results due to initiatives like UK [...]