Patients Participate!

The blog for the JISC-funded Patients Participate! project. Community Content for Participative Medicine: A Feasibility Study.

Category: citizen science project

Citizen Science Platforms

This post gives a brief overview of a selection of systems that are used to support citizen science or crowd sourcing activities.  The examples are selected to illustrate a range of activities and systems and provide an idea of the functionality supported. The systems are Galaxy Zoo, PatientsLikeMe, Acawiki, CoCoCo, Hyperwords and WikiMedia Medicine Portal. [...]

6th Bloomsbury Conference

Tomorrow the Patients Participate! project will be speaking at the 6th Bloomsbury Conference which has the theme of Scholarly outreach, impact and outcomes. There is a wide-ranging programme from discussions of open access, persepectives on impact and public engagement. A link to the slides will be added once the conference website will be updated. An [...]

Open Research Reports

I’ve just heard about the Open Research Reports initiative, an idea to make disease research as openly accessible as possible to the people that really need it. Open Research Reports aim to pull together the corpus of open access literature on a certain disease and also create a mechanism of extracting the important information from [...]

The acawiki.org project

The project with the closest idea to that being investigated in Patients Participate! that we have identified so far is the acawiki.org site. It is a general site run on a wiki platform, that invites summaries of academic articles to make them more accessible. “AcaWiki is building a community of scholars, graduate students, and bloggers [...]