About : Patients Participate!

Patients Participate! will investigate the potential of crowd-sourced “lay summaries”, derived from UK PubMed Central content, to enable patients to better understand research. Having free access to the scientific literature enables patients to participate in the research process but, in practice, they tend to be overwhelmed by the volume and complexity of the literature. Whilst many medical research charities provide lay summaries, evidence suggests that academics struggle to describe their work in a way that is accessible to all. The feasibility study will gather stakeholder requirements, run a community consultation Workshop, assess usability of existing citizen science platforms and develop three Citizen-Patient Use Cases. The project will also produce Advocacy Guidance for academics (via DCC) and for citizens (via BL and AMRC), to facilitate engagement in open and participative (P4) medicine and health science. You can stay up to date with the project by reading the project blog. To subscribe to the blog in an RSS reader please use: http://blogs.ukoln.ac.uk/patientsparticipate/feed/ More about the involvement of the project partners: UKOLN and the British Library.